When I started this blog, I had every intention of updating it at least once a week, if not more, unfortunately, there just does not seem to be enough time in the day(or it might be that I am spending to much time on Pinterest!) This week marked seven weeks since Nathan last received any food through his tube! We also justed started giving him is meds by mouth, so the only thing that he is currently getting through his tube is a small amount of water, which I expect we will begin to slowly reduce in the near future. We have slowly been introducing new foods into his diet, I think that he has about 20 foods that are currently in his rotation. We have been closely watching his weight, at his two week post discharge follow-up appointment, Nathan had actually lost a little bit of weight, which they were not happy with. So, we have been weighing him weekly at home since that appointment. Just last week we started to see some weight gain which is very good. We have also been slowly introducing him into eating in more social settings to prepare him for eating with his peers at school in the fall. This has actually been going fairly well. We have our six week follow-up appointment with the feeding program next week Wednesday and I am really hoping that they are happy with the progress that he has made!
Nathan has also started back up with most of this therapies in the past two weeks. He has ABA therapy one day a week for three hours, one hour of OT and next week will be starting a three week intensive PT session in Zeeland. One of the things that Bob and I struggled with is how much we should have him do this summer, we initially were not planning on having him do anything other than working on eating, but it almost seemed like he was getting a little bored. So, his schedule is pretty busy for the last few weeks of summer. I really hope that we are not pushing him to hard!
Travis has really seemed to be fairly uneffected by all of the changes to our lives this summer, which is what Bob and I had hoped for! He loves being outside, especially in the water. His swimming and comfort level has improved so much over last year. Last week Saturday I am pretty sure that he was in the water from noon until 8:00, only getting out of the water to eat. Bob and I are really happy that we decided to pull our house of the market. Now that the boys are getting older, we are really starting to be able to enjoy all of the benefits of living on the water.
I know that I have said it many times, but I feel like I can't say it enough, thank you for continuing to keep our family in your thoughts and prayers!
